Let me preface this blog post by saying that I am currently bound to my couch for he next 3-4 days with pneumonia. I am a terrible patient and I am also hungry, not from lack of food, but from Prednisone and Olive Garden commercials. I will likely fill this post with grammatical mistakes, but I can't care, because I'm not allowed to do anything else.
This afternoon the UPS guy tapped on the door with a brown box from Amazon. This super fun RV that my Riley boy had been drooling over was inside! There was also a note from Amazon saying that the gift was sent from "nobody." Thank you very much, Nobody!
By dinner time this little baby was already built and starring in its own motion picture, created by Riley on his iPad. He had a great evening.
I'd like to answer a few questions that have been asked between here, Facebook, Instagram (@smalltownjoy) and real life.
1. Was the report Riley received yesterday (see previous post) considered to be a good report?
Yes. In respect to the fact that he has a disease that has no cure and is fighting to take his sight, the report was good. Infection is our enemy and there was no active infection. Think about a volcano when it is dormid. As long as everything is still inside things are stable. When it starts producing more lava it gains strength and destroys. This disease does something similar. He did lose more vision this time, which can be discouraging, but the overall picture was good. I am nervous about him being completely off of his glaucoma drops, but we still have drops and if symptoms arise (headache, pain across bridge of his nose) then we will put drops in right away.
2. What are Riley's favorite place(s) to eat?
His number one place is Zaxby's. He LOVES chicken wings. He also likes Panda Express (Chinese), and IHOP (Pancakes). He eventually wants to return to the Cheesecake Factory for a meal, but that is a big fancy meal that will not happen without a gift card.
3. Did Riley get to use his ice cream gift card?
No, he did not. I didn't go on this trip and I was already sick before they left. When I was going over Riley's God Pocket with Barry I forgot to tell him the ice cream shop is in the mall. I honestly did not think they would stop at the mall. Of course, they did! They ate lunch there and he stopped and bought Riley a McFlurry on the way home with a McDonald's gift card that was also in his God Pocket. Riley LOVES ice cream. Some visits he is so nauseated after the exam that he doesn't want ice cream on the way home. I was thankful he felt well enough for the McFlurry. The next trip we take for his appointment is on a Friday and we will be sure to use it then! We will likely stay overnight two nights due to his appointment and that will give us more time for ice cream. Yippee!
4. You mentioned going somewhere fun for Riley's next appointment. Where would you go?
Riley wants to see the dolphin show at the Georgia Aquarium. If funds allow, we will plan to do that, and try to eat somewhere special.
5. How can I contribute to Riley's prize bag or God Pocket?
We have a Paypal account set up for Riley's God Pocket. Donations can be sent to email@example.com. They are not tax deductible. The funds are used to cover travel expenses, co-pays, treats for Riley, and when there is a larger amount in the account, to help pay down some of his medical bills. His medical bills currently total right around $2500.00, not including the appointment from yesterday.
Earlier this week, the Lord prompted me to set up a wish list for Riley on Amazon. You can find it by going to Amazon.com and clicking on find a wish list. Then enter my email address firstname.lastname@example.org. This list holds some ideas of gifts for his prize bag, gift cards to restaurants in the area and some large things he has had his eye on. Riley currently has a gift card to Amazon. If he receives more then he may be able to purchase one of the fancier selections himself.
If you purchase a gift for him through his Amazon wish list it will ship it directly to us. Unless it says "for now" in the note, I will put it into his prize bag. There is a huge price range in items, but I tried to think of things he would especially love. The gift cards were very limited in dollar amounts you could choose from. Some of the ones I chose are more than we would need for one meal out, but I marked them anyway, to give you an idea of what restaurants are available to us there that he likes and would enjoy.
Purchases made through our etsy shop also go to support his God Pocket and he gets to keep $1 from each of his fridge art sales to put toward something he wants/ needs. (Link on right sidebar).
Ok, there were more questions but I am so sleepy. If you have more questions please leave them in the comments below and I will answer them tomorrow... from the couch. :)
God is good, all the time!